This holiday season we decided to help a family with ALD. These are our friends ( and Posse members!) Lee and her beautiful son Steve. Steve has Adrenoleukodystophy. He was diagnosed at 7 and was not eligible for a transplant because his symptoms were too far progressed. Steve was given 3 to 6 months to live. Three months after his diagnosis Steve could no longer walk, talk or see. He is now 13, but because of his condition he needs round the clock care. Steve’s father died soon after his diagnoses. He passed away of a heart attack. Lee is alone taking care of Steve, she gets very little help from Social Security. Steve’s father did not have life insurance and Lee is unable to work and cares for Steve 24/7. Unfortunately, some necessary items are not covered by Medicaid and my hope is to raise enough money to get a new wheelchair for Steve and some other items desperately needed such as a pulse ox machine and a suction machine. A new custom wheelchair is about $8,000 and Steve is not eligible for a new chair for 4 more years. Although only 13, Steve has grown and doesn’t fit into the wheelchair he currently has.
I asked Lee for permission to share her story! In hopes that we can raise funds for Steve and help him get a new chair.
Below are a few pictures of Steve
Steve at 5 years old
This is Steve 3 months after diagnosed with Adrenoleukodystophy. Steve could not walk nor talk, soon after he lost his sight and went blind.
Steve at 8 years old.
Lee and Steve May 2012
I pray that their story touches your heart and that you’ll be kind enough to help.
God Bless You!
Please help us make a difference for Steve and Lee, please click on the PAYPAL button to the top right of this page and feel free to add a message in this section to go along with your donation.
Dear Seeger family,
My father is a member of the Verizano Rotarian Club and they are eager to help your family in any way they can! This club has been responsible for helping families and individuals in so many ways including personal and medical finances and helping to truly make people’s dreams come true. I would love to hear back from you so I can either give you my fathers information so you can contact him or to please recieve. Ontact information for you. Thank you and God Bless Aidan!
Alyssa De Filippo
P.s you can email me at ADefilippo420@yahoo.com
Dear Seeger family,
Hello, My name is Ed Richardson and i was at the Aidan has a posse benefit show with Buckcherry on August 11. I would like your permission to throw a block party in NEw York city withe the proceds going to your son Aidan. I was very touched by all the support that was in attendance that night and want to continue the support. I am writing you because I just want to get the word out there, and am trying to get Buckcherry to come out and show support. If you want to email me to discuss the details me email is Ramones03@aol.com
Thanks for your time and give my support to Aidan,
Ed Richardson
Aidan – I brought some skull bracelets and necklace for you and your sister last year. Hope to see you at the party cause I got some cool things for you and your sister this year I think you will like. Feel well and see you soon. NYC Irish, Scootergoods Magazine.