Comments for AIDAN HAS A POSSE!

Comment on Please help Steve and Lee this holiday. by Nichole

Nichole — Fri, 14 Dec 2012 01:50:12 +0000

God bless you Lee and Steve. Consider me in your possee!!!! xoxoxo Sassiee

Comment on Keep Signing the Petition by John Tobias

John Tobias — Sat, 13 Oct 2012 12:15:25 +0000

My Grandson has ALD and is 7 years young. April of 2012 he was riding his bike in the driveway, and now Oct. 13, he can’t see, can’t hear hardly at all, and is having a hard time keeping his balance. It’s already too late for a bone marrow transplant. And we all know the end result! I’m very sorry to hear about Aidan and I hope you have success in getting Aidan’s Law passed in the US. We live in Ontario Canada. Only a couple of years ago, our little Grandson Sam Tobias was riding on the back of my motorcycle with me. Now I know he’ll never get to ride a motorcycle, atv, or anything else. All could have been prevented if proper screening had been provided at birth. Maybe Aiden and Sam will be riding buddies in Heaven!

“At best, life is short. At worst, it’s very short. But it’s always Too Short!” JT

Comment on CBS, THE DAILY NEWS AND TONIGHT CHANNEL 11. by Nichole Bushnell

Nichole Bushnell — Wed, 03 Oct 2012 06:58:48 +0000

Love Ya and Miss Ya Aidan!! xoxoxo Sassiee

Comment on WPIX 11 IS HELPING SPREAD by Nichole Bushnell

Nichole Bushnell — Wed, 03 Oct 2012 06:55:08 +0000

We MUST have this blood screaning in place!!!! For the memory of Aidan, and for the futule life’s of our next generation. I miss and love ya Aidan!!! To the Seegar’s, the Possee is all behind you!!! And we all love you guys too !!! This video just broke my heart.

Comment on BUCKCHERRY by Keri Pomeroy

Keri Pomeroy — Wed, 22 Aug 2012 16:46:33 +0000

WTG guys…lets spread the word about these rare diseases so many kids have. My daughter has Alexander Disease, a rare Luekodystrophy.

Comment on by MissSassiee

MissSassiee — Tue, 08 May 2012 23:52:33 +0000

Beautiful pic. Aidan’s smile just melts my heart.

Comment on AIDAN’S STORY by Aidan Jack Seeger - Rest In Peace. Photo by Joe Russo. | SeizeTheMomentNYC

Aidan Jack Seeger - Rest In Peace. Photo by Joe Russo. | SeizeTheMomentNYC — Mon, 30 Apr 2012 21:52:06 +0000

[...] Aidan Jack Seeger was diagnosed in June 2011 with a disease called ALD. “Adrenoleukodystrophy   (ALD,) is a rare, inherited disorder that leads to progressive brain damage, failure of the adrenal glands and eventually death. ALD is a disease in a group of genetic disorders called leukodystrophies. Adrenoleukodystrophy progressively damages the myelin sheath, a complex fatty neural tissue that insulates many nerves of the central and peripheral nervous systems. Without functional myelin, nerves are unable to aid in the conduction of an impulse, which leads to increasing disability. The only way to stop the progression of the disease is with a bone marrow transplant”. [...]

Comment on AIDAN’S STORY by tj

tj — Mon, 30 Apr 2012 01:18:16 +0000

Rest in Peace Little Angel.

Comment on AIDAN’S STORY by ashley

ashley — Fri, 13 Apr 2012 03:08:48 +0000

i pray 4 u every night u are truly a trouper stay stong love u aidan <3 (:

Comment on Get A Home Kit Today! by Cristina gandolfo

Cristina gandolfo — Tue, 06 Mar 2012 15:23:14 +0000

Requesting a kit