AIDAN’S LAW is Official.
New York State will be the first state to test all newborns for ALD starting no later than January 1, 2014
Aidan I know you were with me every step of the way and because of you so many lives will be saved. The signs you’ve sent me along the way and of course today is Good Friday and also exactly 11 months since you’ve left us.
I promised you when I started this fight that it would be done before your 1 year annivesary, the only gift I could possibly give to honor your life. I knew you were a miracle from the second I looked at your beautiful little face and you are an angel for so many boys that will be born after you with this dreaded disease.
There are no words to describe the pain I feel everyday without you, I just know you are here with me in spirit and that I will be with you again.
For the time I have here, I will continue to help all the boys and families with ALD and try to make a difference in their lives.
Love to all of you that have honored Aidan and all the boys and families struggling with this disease. Every petition, every phone call, every message, everytime you shared the story got us to today. It would have never happened without all of this support.
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